This blog chronicles my experience with Ankylosing Spondylitis (AS), my self-management via physical activity (primarily running, tennis, and CrossFit), and the synthesis of AS-focused research.
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March 28, 2007
Stress Fracture?
Today most muscular pain had disappeared, except for some soreness along my left shin. The pain along the lateral side of my right foot had worsened and I was starting to suspect a stress fracture. It was managable during the day; however, towards the end of my 6k run around Queen's Park with a colleague, the pain became unbearable. It was too late to see my family physician for a diagnostic referral; however, my goal is to have my foot assessed at Women's College Hospital tomorrow. I hope nothing is broken; it would hinder my performance at my next race in 2 weeks where I intended to really push myself.
March 26, 2007
Was it worth it? Hell yeah!
The day truly started the night before. I went to Barbarian's Steak House at 7:30pm after mapping the course on my GPS during a day trip to Hamilton, and ordered a delicious bottle of French bordeaux, oysters to whet my appetite, followed by an entree of 10 oz filet mignon with lobster (tail and claw), baked potato (with sour cream, bacon, and feta cheese), topped off with blueberry cheesecake, 3 glasses of water (for hydration of course), and a teapot of loose-leaf chamomile tea to end the meal.
I organized my race gear before heading to bed. I didn't get to sleep as early as I wanted, and once in bed, I was too excited to sleep. I am sure I dozed briefly; it was hard to sway my mind to think of anything other than my strategy for tackling the Hamilton course. My goal was to take it slow in the beginning to warm up (after all, it's been a long time since I did any "real" running/training), kick up my speed in the midst of the race, and then drop it down a bit to conquor the rolling hills for the last 10K of the route. I did not want to focus on time at all for this event; I wanted to see if I could endure 30K in a decent time after a hiatus from routine running.
I awoke on the Sunday at 0630, got dressed, and ate my typical pre-race meal of three eggs (two if I'm doing 21K or less), large-flaked oatmeal, and water (sometimes green tea). I was out the door and in Hamilton by 0830. My Garmin was set and ready to go. I ran into several past running partners--how wonderful it is to reunite at a race. The weather never passed 4 degrees Celcius, although a low of 5 and high of 11 was anticipated. The air was thick with fog on the drive in (at least I think it was fog; it is Hamilton after all). I placed myself behind the 3:10 pace bunny, and made certain I never saw the 3:30 pace bunny pass me (a sure signal I was slowing down). As I passed the start line, I went over on my left ankle thanks to a pothole--luckily no injury; however, the first 5km I was plagued with terrible shin splints. Worried that this had the potential to hamper my performance, I stuck to a slow pace (6:15) and tried to avoid the potholes in the road. The first 10K of the route was through a very run down area that made downtown Detroit look like Forest Hill. Just before the 10K marker, as a group of us waited at a rail crossing for the train to pass (just our luck), a stench resembling that from a bathroom at a cheese convention for lactose-intolerants wafted heavily in the air. It was sickening, but was incentive enough to pick up the pace slightly. My shins felt better and I was feeling great at this point, and kept up my pace (5:45-6:00) until 19K. Now it was time to bear down and take those 10K of hills, keeping a slower but steady pace, anticipating the final steep hill around the 24K/25K marker. My IT band was aching a bit and forced me to walk half of one small hill for 2 minutes. By that time, I had recovered enough to keep going. I followed the tradition of high-fiving the midget playing Queen's "We are the Champions" on a huge stereo system around the 24K/25K mark prior to literally talking myself up the final incline, which felt similar to running up a ladder. Once at the top, I patted myself on the back, and ran at a pace I thought was quicker--but was not given my legs of lead--towards the finish line 4K away in Copps Collisium. I felt the urge to throw up for that entire stretch. It subsided somewhat when I was greeted by a tall fellow in the middle of York Blvd dressed as the Grim Reaper. He was standing near the cemetary along the road and asking passing runners if they were "ready to die yet." In my head I yelled, "No" and pushed my way into Copps to the sound of cheers. What a fabulous feeling!!!!
The day ended with a fabulous post-race meal: a large mojito to accompany a savory 10 oz sirloin, mashed garlic/idaho-sweet potato with vegetables, and mango passionfruit creme brule.
Now that I know I can manage a base of 30K, the rest of this year's training will be cake. I already have my schedule set. Mind you, I shuffle like a penguin and I cannot drive my car (it's a stick-shift). Thanks Steve for driving me to and from work today. Everyone's been calling me Happy Feet--mind you my mental spirits are the happiest of all!
March 23, 2007
Around the Bay: March 25, '07
visited Hamilton last Sunday to drive the race route, which starts at the intersection of York Blvd and Caroline Street. The first 20k of the Around the Bay Road Race is an exciting, scenic, and fast route. The route was relatively flat until 10.5km, where the first small incline of a bridge was encountered. The remaining hills didn't surface again until around 18k: strips of continuous rolling hills lined by beautiful estates (at least I'll have interesting architecture to distract me from fatigue or aching muscles). The last 10k includes rolling hills through scenic North Shore Blvd. The final "hill' is a steep embankment along Valley Inn Road (starting at 26km). It's this hill that causes me the greatest anxiety of this whole race, likely because I have only run five times since the start of the year. Basically, the start of my 2007 training will be begining with Around the Bay (crazy, I know). I look forward to my grand finish into Copps Coliseum at York Blvd. and Bay Sts.Live Results! for all runners will be available during the Around the Bay race this Sunday. Follow a Runner! You will also be able to select the runners you would like to follow and watch their times as they cross the Start, 10K, 15K, 20K and Finish Mats. My bib# is 2884.
March 15, 2007
Enbrel: Day 3 - In the leg
March 14, 2007
March 12, 2007
Feverish
I am not certain if this is related to starting the Enbrel, or the side of a flare I've never previously experienced.
March 10, 2007
Use of a low starch diet in the treatment of AS
Famous sufferers of AS
- Mötley Crüe guitarist, Mick Mars: AILING ROCKER MARS CAN'T MOVE HIS HEAD
- Ramses II
- Former England cricket captain, Mike Atherton;
- Former Australian cricketer, Michael Slater;
- Scottish poet, William Soutar was bed-ridden for the last 13 years of his life due to AS
- British comedian, Lee Hurst;
- Canadian radio personality, Mike Stafford;
- Norwegian Prime Minister, Jens Stoltenberg;
- World Chess Champion, Vladimir Kramnik;
- Former author and "Saturday Review" editor, Norman Cousins;
- Scottish former snooker player, Chris Small;
- Ed Sullivan, the Ed Sullivan Show, US
- Leonard Trask, "The Wonderful Invalid"
- Canadian musician, actor, and writer, Chris Michaud
- The Phillies' first baseman, Rico Brogna had a successful nine-year career in American Major League baseball. Ankylosing Spondylitis forced his early retirement, at 31, in 2001.
Enbrel Treatment: Day 1
A package of Enbrel (below): Four of these come in each box and last 2 weeks. Note: alcohol swabs no longer come in the package and must be ordered seperately.
Site prep (below): Preparing the site properly is critical to minimize risk of infection. I am swabbing my chosen site (left lower quadrant of abdomen) with an alcohol swab.
Safety precautions (below): The far left photo shows my aspirating (pulling back on the plunger) before injecting the solution (right photo).
Injecting (below): The medication must be injected subcutaneously. To do this, pinch the skin and insert the needle at a 45 degree angle.
Complications: Site reactions are common after injecting Enbrel. This site reaction occured within 2 minutes of injecting Enbrel. The site became red, warm to the touch, and itchy, with small welts emerging. You can see a small bump above and to the right of the bloody insertion point. Beneath the site reaction I could feel the bleb of fluid beneath my skin, like a round pebble.
March 06, 2007
Three Cheers!!!
It was a bitterly cold day, but I didn't care. Today was the day I strolled across to Women's College Hospital's pharmacy, with a slight spring in my step, and picked up my prescription for Enbrel. I could not be happier. Two boxes, enough to last me a month, with each box containing four Enbrel dose trays of 25mg vials of etanercept, one diluent syringe, one 27-gauge needle, one vial adapter, and one plunger--all waiting for assembly and usage. Given that I need to inject Enbrel subcutaneously twice weekly, I need to pick days that are convenient. I am thinking Wednesdays and Saturdays would be suitable: I could inject my abdomen at work on Wednesdays and find someone to inject my arm on the weekend. Saturdays are great because it would preload my body before my long runs on Sundays, which tend to cause my body to experience a systemic inflammatory process (aka flare) that lasts well beyond the day.
Tomorrow I will post photographs of myself preparing the medication and injecting it. This would allow those contemplating taking this medication some insight as to the process that must be carried out twice weekly. For people who have difficulty preparing the medication, it also comes in 50mg pre-filled syringes for once weekly injection. Stay tuned.
March 04, 2007
New Running Goals for 2007
Racing Accomplishments
- 2002 Nov--Run For Life 10K
- 2002 Oct--Canadian International Marathon 5K
- 2002 Sept--Community Power Challenge 5K
- 2003 Oct--Canadian International Marathon 21.1K
- 2003 Sept--Longboat Toronto Island 10K
- 2004 May--Ottawa National Capital Race 21.1K
- 2004 Oct--Toronto International Marathon 21.1K
- 2004 Sept--Scotiabank Waterfront Marathon 21.1K
- 2006 April--London Spring Run Off 10K
- 2006 Aug--Midsummer's Night Run 15K
- 2006 Dec--Honolulu Marathon 42.2K
- 2006 July--5 Peaks Durham Regional Forest 5K
- 2006 June--Race the Lake 10K
- 2006 Oct--Vulture Bait Ultra Trail 10K
- 2006 Sept--Scotiabank Waterfront Marathon 21.1K
- 2007 March--Around the Bay 30K
- 2007 April--Harry's Spring Run Off 8K
- 2007 May--SportingLife 10K
- 2007 Oct--Toronto International Marathon 21.1K
- 2008 May--Ottawa National Capital Race 21.1K
- 2008 Aug--Iroquois Trail Test 32K
- 2008 Sept--Scotiabank Waterfront Marathon 21.1K
- 2008 Oct--Run for the Toad 50K
- 2008 Oct--Toronto Zoo Run 10K