8pm: that is the time I got out of bed today.
Since Jan 21 I have been subjected to inhumane amounts of personal stress. It all ended last night; however, as a result of cummulative events, I am grieving the loss of my dear friend, Matthew--a mentor I have admired and respected since 2002.
The emotional and mental stressors took their toll physically: despite awakening at 9am, the general malaise I felt was overwhelming. I did not have the energy to stand upright for long, and had to remain in bed all day. I tried reading to feel somewhat productive, but I could not concentrate. I could not even keep my eyes open for long. So I slept.
It's now 11pm and I still feel so lethargic, as if wearing a heavy lead apron, the kind worn when having an X-ray. I'm frustrated with this cyclical process: stressor-->flare-->stressed-->flare. I am frustrated with the effect this has had on my motivation to run, my ability to concentrate, and my nutritional habits. The cold weather has not helped either. I'm not usually one to complain about anything, but I am so tired of this disease.
Hi Cassandra,
ReplyDeleteYour stories are indeed very inspiring and I look forward to reading your blog everyday. So glad to know I'm not the only one.
Incidentally have you tried a Low/No Starch Diet for the AS? I was hoping to get your opinion on it.
Regards,
Hi Anonymous,
ReplyDeleteI have a fabulous Nutritionist and I have requested him to investigate the benefits of a low/no starch diet for AS. I will also perform global research to see what studies have cited any effects of this diet on our disease.
How long have you had AS for? You are more than welcome to email me your AS experience, which (if you like), I can post on the blog.
Best